The Friedreich’s Ataxia Research Alliance (FARA) will mark National Rare Disease Day Feb. 28 with its second annual “Move Your Way” campaign, which stresses the importance of staying active.
According to FARA, Facebook users who want to participate in Move Your Way can do the following:
- Decide how you want to move: Cycle, use your stander, run, dance, walk, roll, yoga, cheer … anything.
- Decide who is moving with you: Yourself, family, friends, co-workers, school, gym, community groups … anyone.
- Print and wear your bib number: Print the attached bib or visit http://curefa.org/_pdf/MoveYourWay2014-bib.pdf to download online.
- Share photos: For the entire month of February, take pictures moving your way (and wearing your bib) and post to http://www.facebook.com/pages/Move-YOUR-Way-for-Rare-Disease-Day/332770276837976 along with your story.
FARA Executive Director Jennifer Farmer said in a release announcing Move Your Way:
Rare Disease Day is an opportunity to educate the public about just how many people are affected by rare diseases and the need for increased attention and funding. Joining with other rare disease organizations recognizing Rare Disease Day, we are hoping that the Move Your Way initiative will bring that awareness and celebrate all of the ways we move.